In preparing a much needed meeting with my dissertation supervisor, I came across a few ethical issues in relations to my future dissertati
on. Since I believe writing them down and posting them on my blog will increase my chances of finding solutions to them, I would like to raise a few matters with you. All comments or feedback will be much appreciated !
I recently enrolled with the British Red Cross to volunteer for a program called Care in the Home. This initiative provides Camden elderly people with volunteering carers to help in their rehabilitation process after a long stay in a hospital. Carers follow and monitor these patients for a period of 6 weeks, while assisting them in their weekly tasks such as running errands, paying monthly bills, regaining autonomy, etc.
But most importantly, carers offer their support and companionship, as most of these people suffer from solitude and isolation.
As I am currently being trained as a carer, I can only share a very educational perspective in regards to this programme. But from what I’ve learned so far, this program offers a great example of community-based partnership with the NHS, and truly helps in providing, albeit a very temporary, solution to these lonely and ill people.
I have asked myself the reason why I have decided to commit with the Red Cross and came across several interesting and revealing answers. First of all, I think I need to get involved in my community as much as these patients need the Red Cross support. It is a means for m
e to better settled in London and make new acquaintances with Red Cross Staff. But it is also a way to fight my very individualistic and selfish needs… and to get in touch with what I consider ‘the real world’. (Quite often, I do feel like my easy-going student life doesn’t quite correspond or fit to what’s really tanking place in my neighborhood.)
Writing a masters’ dissertation can also make you feel like you have way too much time on your hands… and I felt that I probably should use this time a little more wisely. Besides, aren’t we all more productive when we have a deadline anyway ? The busier I get, the more effective I become.
But mostly, since I developed a growing interest in the field of public health, the least I could do is to go out there and give some of my free time. I feel the need to stop getting my nose into dozens of books and get firsthand health promotion experience! Volunteering seemed like the best and easiest option.
But I also asked myself (honestly!) if I was considering this voluntary work opportunity mostly for my upcoming dissertation. And quite frankly, the answer is no. This is just a genuine need to help out others, meet new people, and get out of my comfort zone. This opportunity has, however, made me explore further aspects of the public health domain. Through my readings, I discovered the concept of social capital, which has in turn, made me reflect upon the Red Cross services and the Care in the home program. My dissertation is really a work in progress, and its topic keeps being refined every day. But let’s just say that the idea of social capital has become one of my main focus, which I intend to explore further.
Thus, what I am interested in, and what I am about to present to my supervisor, is the correlation between these patients social capital and their self-rated health status. There is a strong body of evidence which suggests that social capital, i.e. social networking, integration, civic participation and community trust, is linked to improved health and that its support may be more cost-effective than t
he traditional manipulation of lifestyles and behaviors.
Since these people are still recovering from a long stay in the hospital, we can assume that their health is rather fair or poor. However, based on preliminary studies linking social capital and health patterns, evidence suggested that their association had a beneficial impact on patents’ overall own health evaluation.
Hence, I am interested in analyzing if (and how) this 6-week Red Cross program is indeed improving the health of these patients/clients. Is the fact that they are volunteers and not paid social-workers impacting in any ways on the established relationship and trust between carers and patients ? And how are these people defining and self-rate their health ? Since I strongly believe concepts of health are culturally defined and largely mediated, I also would like to measure how are these concepts understood and integrated in to society, focusing on the elderly.
But at this time, I find myself struggling with my research design. How should I collect my data? I thought of conducting semi-structured interviews with the coordinators of the Care in the home programs and to keep a field-diary of my observations. But I feel the need to also inform patients about my research projects. And this is where it becomes a little more complex. I do not want these patients to position themselves as subjects of a research. After all, my priority and main focus will remain my role as a carer, not as a researcher. Still, I believe it is possible to combine both positions, but in which way? Do I wish to remain very objective in this research process or can I immerse myself in my role as a carer and turn this research into a very professional but also very subjective experience? Will it be possible to formally interview them or will this data be collected through informal, casual and dispersed chats?
There is also the possibility of adopting a participative approach, where subjects fully engage in every step of the research process. But I fear these subjects/clients will be in no condition to take part as such is this dissertation research.
So far, that’s where I am at. Hopefully, this picture will get clearer within the next few days… and I will get a few answers back from the Red Cross.